[Erratum] Perception of parents and caregivers of children with disabilities about rehabilitation services during the COVID-19 pandemic in Brazil
DOI:
https://doi.org/10.17267/2238-2704rpf.2023.e5500Keywords:
COVID-19, Disabled Children, Rehabilitation Services, Physical TherapyAbstract
INTRODUCTION: During the coronavirus pandemic in Brazil, the suspension of rehabilitation sessions for children with disabilities was observed. OBJECTIVE: To analyze the progress of rehabilitation sessions during the pandemic, as well as the form of support that parents/caregivers received during this period. MATERIALS AND METHODS: Qualitative study, with a cross-sectional design, conducted online through the Survey Monkey platform. Parents and caregivers of children with motor disabilities aged zero to four years old participated, and were recruited through social media. Data collection took place by a questionnaire with 17 open and closed questions, accessible for a period of three months during the period November 2020 to January 2021. RESULTS: All questionnaires were read in full and after observing saturation of responses, 37 were eligible. The suspension of sessions in rehabilitation services ranged from 2 to 9 months. During this period, twenty-six families received guidance from the professional or the institution to stimulate the child at home, for the others who did not receive guidance, the justification provided was to wait for the resumption of care. Sixteen families had difficulties performing the activities/exercises proposed by health professionals in the home environment. CONCLUSION: Parents' responses identified feelings of concern and anxiety about the suspension of rehabilitation services during the pandemic and fear of possible damage to children's neuropsychomotor development. In addition, parents felt helpless by health services and professionals.
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(1) Pan American Health Organization, World Health Organization. WHO characterizes COVID-19 as a pandemic [Internet]. Washington: PAHO/WHO; 2020. Available from: https://www.paho.org/pt/news/11-3-2020-who-characterizes-covid-19-pandemic
(2) Organização Pan-Americana da Saúde, Organização Mundial da Saúde. Histórico da pandemia de COVID-19 [Internet]. Washington: OPAS/OMS. Available from: https://www.paho.org/pt/covid19/historico-da-pandemia-covid-19
(3) Wittmeier KDM, Hammond E, Tymko K, Burnham K, Janssen T, Pablo AJ, et al. “Another Tool in Your Toolkit": Pediatric Occupational and Physical Therapists' Perspectives of Initiating Telehealth during the COVID-19 Pandemic. Phys Occup Ther Pediatr. 2022;42(5):465-81. https://doi.org/10.1080/01942638.2022.2065898
(4) Portaria nº 188, de 3 de fevereiro de 2020 (Brasil). Declara Emergência em Saúde Pública de importância Nacional (ESPIN) em decorrência da Infecção Humana pelo novo coronavírus (2019-nCoV). [Internet]. Diário Oficial da União. 2020 fev. 4. Available from: https://legislacao.presidencia.gov.br/atos/?tipo=PRT&numero=188&ano=2020&data=03/02/2020&ato=9ecUTW61EMZpWT815
(5) Fernandes LG, Saragiotto BT. To what extent can telerehabilitation help patients in low- and middle-income countries?. Braz J Phys Ther. 2021;25(5):481-3. https://doi.org/10.1016/j.bjpt.2020.11.004
(6) Trentin AGD, Dourado DM, Vasconcelos EH. Clinical Care and its Challenges in Rehabilitation in Pandemic Times [Internet]. Rev. Enfermagem e Saúde Coletiva. 2020;4(2):24-31. Available from: https://www.researchgate.net/publication/343264054_Atendimentos_Clinicos_e_seus_Desafios_na_Reabilitacao_em_Tempos_de_Pandemia_Clinical_Care_And_Its_Challenges_in_Rehabilitation_in_Pandemic_Times
(7) Brichi ACS, Oliveria AKC. The use of family-centered approach in rehabilitation neuropediatric. Rev Bras Ciênc Saúde. 2013;11(38):74-81. https://doi.org/10.13037/rbcs.vol11n38.2006
(8) Camargo S, Souza B. Manual de ajuda para pais de crianças com paralisia cerebral. 9th. ed. São Paulo: Pensamento; 1999.
(9) Novak I, Berry J. Home Program Intervention Effectiveness Evidence. Phys Occup Ther Pediatr. 2014;34(4):384-9. https://doi.org/10.3109/01942638.2014.964020
(10) Rodrigues SMA, Feliciano JS, Coutinho PFF, Melo DPG, Gonçalves RV. Telerehabilitation in pediatric neurofunctional physical therapy during the COVID-19 pandemics: parents' perception, challenges and contributions. J Physiother Res. 2023;13:e4907. https://doi.org/10.17267/2238-2704rpf.2023.e4907
(11) Tudella E, Formiga CKMR, editors. Fisioterapia neuropediátrica: abordagem biopsicossocial. 1a. ed. Santana de Parnaíba: Manole; 2021.
(12) Rosenbaum PL, Silva M, Camden C. Let’s not go back to ‘normal’! lessons from COVID-19 for professionals working in childhood disability. Disabil Rehabil. 2021;43(7):1022-8. https://doi.org/10.1080/09638288.2020.1862925
(13) Borges VC. Percepção dos pais sobre a alteração da rotina de fisioterapia em crianças e adolescentes com paralisia cerebral durante a pandemia covid-19 [dissertation] [Internet]. Alfenas: Universidade Federal de Alfenas; 2022. Available from: https://bdtd.unifal-mg.edu.br:8443/handle/tede/2114
(14) Magalhães PHS, Azevedo RCTM, Souza BMD. The impacts caused by the coronavirus pandemic on the daily lives of patients with disabilities at the prevention and rehabilitation specialized center - Feira de Santana Apae center - experience report. Apae Ciência [Internet]. 2021;16(2):232-7. Available from: https://apaeciencia.org.br/index.php/revista/article/view/316
(15) Maior CDS. The overcoming of a mother in caring for a physically disabled child with dystonic cerebral palsy during social isolation when fighting the coronavirus /covid-19. Apae Ciência [Internet]. 2021;16(2)219-31. Available from: https://apaeciencia.org.br/index.php/revista/article/view/315
(16) Souza TS, Aleluia IRS, Pinto EB, Pinto Junior EP, Pedreira RBS, Fraga-Maia H, et. al. Organization and offer of physical therapy care in response to the COVID-19 pandemic in Brazil. Ciênc Saúde Coletiva. 2022;27(6):2133-42. https://doi.org/10.1590/1413-81232022276.00752022
(17) Hall JB, Woods ML, Luechtefeld JT. Pediatric physical therapy telehealth and COVID-19: Factors, facilitators, and barriers influencing effectiveness-a survey study. Pediatr Phys Ther. 2021;33(3):112-8. https://doi.org/10.1097/pep.0000000000000800
(18) Camden C, Silva M. Pediatric Teleheath: Opportunities Created by the COVID-19 and Suggestions to Sustain Its Use to Support Families of Children with Disabilities. Phys Occup Ther Pediatr. 2022; 41(1):1-17. https://doi.org/10.1080/01942638.2020.1825032
(19) Hurtubise K. Telehealth: Moving It Forward as an Option to Enhance Family-Centered Pediatric Rehabilitation Services. A Commentary on “‘Another Tool in Your Toolkit’: Pediatric Occupational and Physical Therapists’ Perspectives of Initiating Telehealth during the COVID-19 Pandemic”. Phys Occup Ther Pediatr. 2022;42(5):482-9. https://doi.org/10.1080/01942638.2022.2106769
(20) Schlichting T, Silva KM, Moreira RS, Moraes MVM, Rocha NACF, Boyd RN, et al. Telehealth Program for Infants at Risk of Cerebral Palsy during the Covid-19 Pandemic: A Pre-post Feasibility Experimental Study. Phys Occup Ther Pediatr. 2022;42(5):490-509. https://doi.org/10.1080/01942638.2022.2057209
(21) King S, Teplicky R, King G, Rosenbaum P. Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature. Seminars in Pediatric Neurology. 2004;11(1):78-86. https://doi.org/10.1016/j.spen.2004.01.009
(22) Fioratti I, Fernandes LG, Reis FJ, Saragiotto B. Strategies for a safe and assertive telereabilitation pratice. Braz J Phys Ther. 2021;25(2):113-6. https://doi.org/10.1016%2Fj.bjpt.2020.07.009
(23) King S, Teplicky R, King G, Rosenbaum P. Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the literature. Semin Pediatr Neurol. 2004;11(1):78-86. https://doi.org/10.1016/j.spen.2004.01.009
(24) Silva AP, Pacheco LMF, Leitão FNC, Cavalcanti MPE, Rocha JBF, Araújo SDT, et al. Mental health status and quality of life of people with disabilities in social isolation. J Hum Growth Dev. 2021;31(3):470-5. http://dx.doi.org/10.36311/jhgd.v31.12619
(25) Marconi MA, Lakatos EM. Técnicas de pesquisa. Atualização da edição João Bosco Medeiros. 9th. ed. São Paulo: Atlas; 2021.
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Copyright (c) 2023 Jenifer Silva de Souza, Maria Cecília Marconi Pinheiro Lima
This work is licensed under a Creative Commons Attribution 4.0 International License.
This work is licensed under a Creative Commons Attribution 4.0 International License.
