Evaluation of workload burden and the level of knowledge of caregivers regarding the transfer of neurological patients
DOI:
https://doi.org/10.17267/2238-2704rpf.2025.e6356Keywords:
Caregivers, Patient Transfer, Nervous System DiseasesAbstract
OBJECTIVE: To identify the level of knowledge of informal caregivers regarding the transfer of neurological patients attending the physical therapy teaching clinic of the Universidade Estadual do Norte do Paraná – UENP (State University of Northern Paraná) and to assess their workload burden. METHODS: This is a descriptive, cross-sectional study conducted between December 2022 and November 2023, using questionnaires that assessed caregivers’ sociodemographic characteristics and their knowledge of patient transfers, addressing both theoretical and practical aspects. To evaluate caregiver burden, the QASCI questionnaire was applied. RESULTS: It was observed that most caregivers did not know what patient transfers were, had not received any training or guidance, and had never taken any caregiving course, showing a low level of knowledge about transfers — both regarding their definition, purpose, and correct execution. Caregiver age was correlated with higher workload burden. FINAL CONSIDERATIONS: The study identified that caregivers have a low level of knowledge about patient transfers. These findings highlight the need for implementing health education initiatives focusing on patient handling, caregiving techniques, and caregiver self-care during transfer activities.
Downloads
References
1. Hong SE, Kim CH, Kim EJ, Joa KL, Kim TH, Kim SK, et al. Effect of a caregiver’s education program on stroke rehabilitation. Ann Rehabil Med. 2017;41(1):16-24. https://doi.org/10.5535/arm.2017.41.1.16
2. Johnson K, Swinton P, Pavlova A, Cooper K. Manual patient handling in the healthcare setting: a scoping review. Physiotherapy. 2023;120:60-77. https://doi.org/10.1016/j.physio.2023.06.003
3. Turner F, Seiger C, Devine N. Impact of patient and caregiver transfer training provided by a physical therapist in the hospice setting: a case study. Am J Hosp Palliat Care. 2013;30(2):204-9. https://doi.org/10.1177/1049909112444716
4. Welter YP, Tocchetto KE, Tuni DC, Camargo GC, Piccinini AM. Analysis of self-perceived overload in caregivers of neurological patients: an integrative review. FisiSenectus. 2021;9(1):73–84. https://doi.org/10.22298/rfs.2021.v9.n1.6482
5. Nunes SFL, Alvarez AM, Costa MFBNA, Valcarenghi RV. Determining factors in the situational transition of family members who care of elderly people with parkinson’s disease. Texto Contexto Enferm. 2019;28:e20170438. https://doi.org/10.1590/1980-265X-TCE-2017-0438
6. Diniz MAA, Melo BRS, Neri KH, Casemiro FG, Figueiredo LC, Gaioli CCLO, et al. Comparative study between formal and informal caregivers of older adults. Ciênc Saúde Colet. 2018;23(11):3789–98. https://doi.org/10.1590/1413-812320182311.16932016
7. Moraes MN. Sobrecarga em mulheres que cuidam de crianças e adolescentes com transtornos mentais [tese de pós-graduação] [Internet]. João Pessoa: Universidade Federal da Paraíba; 2020. Available from: https://repositorio.ufpb.br/jspui/handle/123456789/21086
8. Curimbaba RG, Rioli TO, Paschoarelli LC, Botura Júnior G, Silva JCP. Handling and transfer of patients in the hospital environment. Ergo Design USIHC [Internet]. 2014:1-7. Available from: https://www.sorocaba.unesp.br/Home/Graduacao/EngenhariadeControleeAutomacao/galdenoro1906/handling-and-transfer-of-patients-in-the-hospital-environment.pdf
9. Bosch PR, Barr D, Roy I, Fabricant M, Mann A, Mangone E, et al. Association of caregiver availability and training with community discharge from inpatient rehabilitation after a stroke. Arch Rehabil Res Clin Transl. 2023;5:100251. https://doi.org/10.1016/j.arrct.2022.100251
10. Galvão RO, Teixeira E, Nemer CRB. Illustrated guide to mediate health education with people after stroke: construction and content validation. REAS, 2020;12(11):e4450. https://doi.org/10.25248/reas.e4450.2020
11. Moraes JG, Crespo JMFS, Terra SO, Soares EV, Monteiro NA. Avaliação dos fatores de risco em cuidadores de pacientes neurológicos. Persp online: Biol & Saúde. 2019;30(9):34–45. https://doi.org/10.25242/886893120191948
12. Gratão ACM, Talmelli LFS, Figueiredo LC, Rosset I, Freitas CP, Rodrigues RAP. Functional dependency of older individuals and caregiver burden. Rev Esc Enferm USP. 2013;47(1):137–44. https://doi.org/10.1590/S0080-62342013000100017
13. Almeida DA, Santos MS, Rosa WAG, Zeferino MGM, Oliveira ISB, Lenza NFB. Conhecimento dos cuidadores intradomiciliares de idosos com DM tipo 2 em insulinoterapia, na atenção primária. Saúde (Santa Maria). 2018;44(2):1-13. https://doi.org/10.5902/2236583431014
14. Ballarin MLGS, Benedito AC, Krön CA, Christovam D. Sociodemographic profile and burden of informal caregivers of patients assisted in occupational therapy outpatient clinic. Cad Ter Ocup UFSCar. 2016;24(2):315–21. https://doi.org/10.4322/0104-4931.ctoAO0607
15. Cruz LF, Menzen ÉF, Ozório EP, Muniz Filho ÁR, Meireles ALF. Caregiversprofile of stroke patients with moderate to total dependence. Vittalle. 2019;31(2):17–24. https://doi.org/10.14295/vittalle.v31i2.8862
16. Pavarini SCI, Bregola AG, Luchesi BM, Oliveira NA, Ottaviani AC. Sociodemographic, clinical, and psychosocial factors associated with burden in older caregivers: a cross-sectional study. Dement Neuropsychol. 2023;17:e20220030. https://doi.org/10.1590/1980-5764-DN-2022-0030
17. Crescente LG, Fontanive VN, Abegg C. Qualidade de vida de cuidadores de idosos dependentes vinculados a uma unidade de saúde de Porto Alegre/RS. R Bras Qual Vida. 2019;11(3):e10720: https://doi.org/10.3895/rbqv.v11n3.10720
18. Siqueira FD, Girardon-Perlini NMO, Andolhe R, Zanini RR, Santos EB, Dapper SN. Caring ability of urban and rural family caregivers: association with overburden, stress and coping. Rev Esc Enferm USP. 2021;55:e03672. https://doi.org/10.1590/S1980-220X2019019103672
19. Prieto JLR, Leyva LME, Mejías Pupo MM. Characterization and knowledge level of the bedridden patient informal caregiver in the community. Pedro del Toro Saad Health Area. Holguín 2018. Correo Científico Médico (CCM) [Internet]. 2020;24(2):476–90. Disponível em: http://scielo.sld.cu/pdf/ccm/v24n2/1560-4381-ccm-24-02-477.pdf
20. Lee KW, Choi SJ, Kim SB, Lee JH, Lee SJ. A Survey of Caregivers’ Knowledge About Caring for Stroke Patients. Ann Rehabil Med. 2015;39(5):800-15. https://doi.org/10.5535/arm.2015.39.5.800
21. Lopes CC, Oliveira GA, Stigger FS, Lemos AT. Association between the occurrence of pain and caregivers overload on main and the elderly independence level in daily life activities: cross sectional study. Cad Saúde Colet, 2020;28(1):98-106. https://doi.org/10.1590/1414-462X202028010184
22. Landeiro MJL, Peres HHC, Martins T. Assessment of information needs of home caregivers. Rev Enferm UFSM. 2015;5(3):486–98. https://doi.org/10.5902/2179769216886
23. Gazzoni C, Carretta MB. Spirituality and religiosity: family resilience in facing the diagnosis of cancer in children and adolescents. Saúde (Santa Maria). 2018;44(2):1-9. https://doi.org/10.5902/2236583425284
24. Tsai CF, Hwang WS, Lee JJ, Wang WF, Huang LC, Huang LK, et al. Predictors of caregiver burden in aged caregivers of demented older patients. BMC Geriatr. 2021;21(1):59. https://doi.org/10.1186/s12877-021-02007-1
Downloads
Published
Issue
Section
License
Copyright (c) 2025 Amanda Maria Alves, Ana Julia de Azevedo, Natali Maciel Folster de Santana, Vagner Pires de Campos Júnior, Igor Calixto da Silva, Mariana Moskado Batista de Almeida, Angelica Yumi Sambe, Camila Costa de Araujo Pellizzari, Joyce Karla Machado da Silva

This work is licensed under a Creative Commons Attribution 4.0 International License.
This work is licensed under a Creative Commons Attribution 4.0 International License.
